Forth Valley Sensory Centre

RP Fighting Blindness Event

RP Fighting Blindness are holding an Information Day at the Forth Valley Sensory Centre focusing on Inherited Retinal Dystrophies (IRDs) and syndromes, including retinitis pigmentosa and Usher syndrome. This is the final event in the 2018 series.

This is a great opportunity to find out more about IRDs. The event will include presentations from medical professionals, see the latest technology products as well as the chance to meet with other local sight loss charities and find out what they are offering as well as learning more about the work of RP Fighting Blindness.

This event is free of charge, and is open to:
Anyone affected by an inherited retinal dystrophy
Family and friends
Professionals working with affected families
Anyone interested learning more about this important group of eye conditions

Registration is required and places are limited, so please do contact RP Fighting Blindness to confirm your place!

If you would like to attend the event or you have any questions, please contact the RPFB office for further details.

Telephone: 01280 821334

Email: services@rpfightingblindness.org.uk

Post: RPFB, P.O Box 350, Buckingham MK18 1GZ

RP Fighting Blindness Event Programme 10th September

10.00 am Registration / Refreshments / Networking

10.30 am Welcome & Housekeeping
Matthew Carr, RP Fighting Blindness

10.35 am What are our realistic options for treating RP?
Dr Roly Megaw, Institute of Genetics and Molecular Medicine, The University of Edinburgh

11.15 am OxSight Smart Glasses
Mr Daniel Crown, Consultant Optometrist

12.15 pm LUNCH
Opportunity to visit the stands and network

1.15 pm Understanding Retinitis Pigmentosa: from patient mutations to disease mechanism and beyond
Dr Toby Hurd, MRC Human Genetics Unit, University of Edinburgh

1.45 pm RP Fighting Blindness – The Charity, Denise Rawden, Regional Services Manager

2.00 pm Information share
Local Organisations Overview

2.35 pm BREAK

2.55 pm The Patient Journey

3.15 pm Accessible Apps
Sight Scotland

4.00 pm Reconvene for Closing Remarks & Thanks

RP Fighting Blindness Logo

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